I have been waiting to say those words for a year now! It is finally here. The biggest part of this journey is over, and we feel like a huge weight has been lifted off of us. Caleb is so excited to be done, too. He asks me every day how long until his hair starts coming back. He has been such an amazing inspiration to so many people – me included.
The doctors and nurses worked really hard to get Caleb our as quickly as possible. We were planning on coming home Sunday afternoon like we normally do, but they were able to get him out and back home Saturday night! We so love and appreciate the doctors and nurses that have made life easier for us these last few months.
Still, we are not finished with the journey. We still have trips to the clinic to make over the next few weeks and it will take several weeks for Caleb’s body to recover from the ravages of chemotherapy. It looks as if I will have to continue to school the boys at home through the rest of this school year, as well, so I still will not be working for the foreseeable future.
Speaking of that, I have to say that my frustration has grown immensely over the last couple of weeks with school. I am not made for this stuff! I do NOT want to put the boys back in public school, but that may be inevitable. Private school is not an option right now because of the expense. There is a reason that I have done very little in the way of teaching private music lessons over the years – I don’t have the patience. And it is even worse when dealing with school subjects. The boys are already behind because of the trips to clinic and hospital stays we’ve had the last few weeks. I would appreciate your prayers. We need wisdom for how best to move forward with it, and I need relief from the frustration. My wife is the best school teacher I know of. And I am the exact opposite! We are a perfect match! I’m so thankful that God matched our strengths and weaknesses so perfectly. She’s a great teacher, I’m not. She’s passive, I’m aggressive and assertive. She’s good with money and very tight with it, I would give away all our possessions if she’d let me.. She’s smart and beautiful, I’m… Okay, enough of that.
I would really like to have a big party in the next few weeks to celebrate the end of the chemo. I am still trying to figure out how, when, and where to do it. But I think it would be a great time for us to celebrate with friends and family all that God has done. Keep your ears open. I will post the details if and when it comes about.
We go back in to clinic tomorrow for a follow-up and to check counts. We will talk to the doctor to see what the next steps are. We also learned that they are throwing a big party for Caleb in clinic. I will try and take pictures.
We were delayed several weeks from starting the last week of chemo because Caleb’s counts stayed so low. They told us that they were nor surprised because the marrow gets so weakened from all the chemo. As time goes by, all the chemo affects the marrow’s ability to produce blood cells, so the body recovers more slowly over time. We are believing God that Caleb will recover quickly and it won’t be an issue for him.
Please don’t stop praying for us. There is still more road ahead to be traveled as we wrap things up. Also, we have brought a very big medical bill out of this journey. Our emergency fund and savings were depleted long ago because of the travel expenses and medical bills. We are walking by faith every day and are thankful our cars have held up (one will turn over 200k miles in the next few weeks, the other is approaching 300k) and we have had no major unexpected expenses. It is by the grace of God that we have made it this far! And we will continue to make it. He is so good.
Thanks for hanging in there with us. Most people have become weary of our situation and moved on with life. We appreciate our true friends that have endured to the end with us. We love each of you and thank God for your love and support!
The Lord is my shepherd;
I shall not want.
He makes me to lie down in green pastures;
He leads me beside the still waters.
He restores my soul;
He leads me in the paths of righteousness
For His name’s sake.
Yea, though I walk through the valley of the shadow of death,
I will fear no evil;
For You are with me;
Your rod and Your staff, they comfort me.
You prepare a table before me in the presence of my enemies;
You anoint my head with oil;
My cup runs over.
Surely goodness and mercy shall follow me
All the days of my life;
And I will dwellin the house of the Lord
Forever. -Psalm 23