We had another delay this past week. We went in Monday and Caleb’s hemoglobin was low, so they gave him a unit of blood. He was feeling much better after getting it, as he usually does when he gets a boost like that. The plan was to come back on Wednesday and Thursday for two days of chemo in the clinic.
When we arrived Wednesday, the nurses took a blood sample for testing and everything looked great. However, Caleb had caught a cold over the weekend and had an infection in his ear from it. They felt it would be better to not take a chance on giving Caleb chemo, having his numbers drop again, and risk the infection getting worse because of it. So instead we pushed everything back a week for the second week in a row.
Caleb is keeping his chin up and staying positive. We now have a target date of September 21 for our final day of chemo ever. We have a clinic visit Tuesday and Wednesday of this week, one day in clinic next week, and the following week we will be in the hospital for five days.
We heard back from the Make a Wish Foundation this week. The volunteers had told us that they had never seen a patient not get their first wish, but Caleb’s was denied because of it being a motorized vehicle. The volunteers working with us are pleading the case for Caleb this week, so please be praying and agreeing with us for favor for Caleb to get his first wish. He really had his heart set on it and it would be something the whole family can enjoy for years to come. There are some alternatives that are almost as good as what he wants, but we are praying for him to get his wish. We will keep you all posted.
We are also praying for wisdom and direction for once the chemo is over. There are some doors that have opened and are available that we are praying about. I want to be sure we are doing God’s will in whatever direction we go. I am thankful for the small opportunities that have come along that have allowed me to do some work from home, but I don’t want to merely work a job to make some money to help make ends meet. I want to be fulfilling my purpose and calling according to what God has called me to do. We appreciate your agreement with us for the wisdom that God promised to give us (James 1:5).
My son, give attention to my words;
Incline your ear to my sayings.
Do not let them depart from your eyes;
Keep them in the midst of your heart;
For they are life to those who find them,
And health to all their flesh. Proverbs 4:20-22