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Another Delay :(

Yesterday, I posted on Facebook that it had not hit me what that day was until late in the afternoon. One year ago yesterday, Caleb had been in a lot of pain in his leg for a couple of days. We had been seeing his physician about an odd rash that had popped up a few weeks earlier after a trip to the beach. But with a deeper pain, he recommended that we take Caleb in for an x-ray to see what was going on to cause the pain.

We went to MCG and after sitting in a room for a couple of hours listening to the doctors outside our room talking about the best golf courses to play and their handicaps while my son lay on the bed in pain, I was trying to hold my growing anger. When the doctor finally came in, he said that an x-ray was not needed. I told him our family physician had suggested we make the hour-long drive to get an x-ray because Caleb – who has a high pain tolerance – was in tremendous pain and that we had excellent insurance that would pay for it, so why not just do it while we were there? But they were more interested in hearing about the rash issue that had already been resolved by our physician (turns out he was right about wanting an x-ray, too!). We were sent home with no x-ray and told there was nothing to it. Hmm.

Two weeks later, our lives would be turned upside-down. I was thinking about our journey over the last year yesterday while watching our youngest son, Josh, practicing football. The faithfulness of God has been so evident in our situation. I sat there and watched a bad storm cloud pass about 8-10 miles from our location. It looked vicious and mean, with a lot of lightening. It had a trail of rain following the initial fury of the storm. But behind it was a break in the clouds and a vision of sunshine breaking through the clouds.

I felt God speaking to me that it was a lot like what has been going on in our lives – a vicious storm hitting hard, followed by rain and wind. But there was the sun piercing the clouds once it was over. This week, we can start to see the sun shining through. It is such a sweet sight!

This was the worst possible week for us to finish up with a stay in the hospital. We were supposed to be finished a couple of weeks ago, but with some delays it pushed us back to this week. I got hired for a gig this weekend. I am practicing every day this week, plus three performances this weekend.

I say that to say that I am not totally upset about the delay this time. It was going to be tough to get everything worked out like we needed it with me having something going on every night from now until Sunday. Although we are disappointed that we have another week to wait, at least it is the LAST week of chemo!

We got to the hospital this morning and they took Caleb’s counts. His ANC is 700 and platelets were at 45k – both too low to hit him with more chemo. The nurse told us that she is not surprised; that near the end of the chemo, the marrow is so weakened from the treatments that there are usually delays because of low counts. It is actually a good sign to them. We are definitely seeing why they have a set time frame of taking treatments. Chemo is hard on these kids. The nurse is confident that we will be good to go next Tuesday. We will be heading back in and giving it another shot.

We appreciate your prayers and support! I will keep you updated on Caleb’s status. Also, please be praying for a person close to our family that has been causing grief to us while knowing what we are going through in dealing with Caleb. He is confused, deceived, and needs Jesus. We have been genuinely praying for him and ask that all of my friends pray for him, too. Our God is greater!

Psalm 121

I will lift up my eyes to the hills—
From whence comes my help?
My help comes from the Lord,
Who made heaven and earth.

He will not allow your foot to be moved;
He who keeps you will not slumber.
Behold, He who keeps Israel
Shall neither slumber nor sleep.

The Lord is your keeper;
The Lord is your shade at your right hand.
The sun shall not strike you by day,
Nor the moon by night.

The Lord shall preserve you from all evil;
He shall preserve your soul.
The Lord shall preserve your going out and your coming in
From this time forth, and even forevermore.